Het Open Medicine Instititute, een initiatief van dr. Andreas Kogelnik,
start een grootschalig, meerjarig project om "het mysterie van ME/CVS te ontrafelen".
Een consortium van wereldvermaarde experts ("buitenstaanders" waar het gaat om ME/CVS),
zal, in onder leiding van Ronald W. Davis, met de nieuwste onderzoekstechnieken
uiteenlopende studies verrichten naar afwijkingen in en de oorza(a)k(en) van ME/CVS.
Het "consortium" streeft naar een jaarlijks onderzoeksbudget van $ 5.000.0000.
"The millions of suffering ME/CFS patients are owed
an apology and a concerted urgent effort to find effective treatment"
Ronald W. Davis, PhD
Voor een uitgebreid kommentaar klik op onderstaand logo:
The END ME/CFS Project
Open Medicine Foundation (OMF) and top experts
under the guidance of world-renowned geneticist Ronald W. Davis, PhD
are launching a bold new project of collaborative research.
The ultimate goal is to unlock
the mystery of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
"I really enjoy working on problems that others think are unsolvable,
and I've been finding, to my surprise, that the older I get, the easier it is to take on those problems",
Ronald W. Davis, PhD, OMF Scientific Advisory Board Director.
OMF's new END ME/CFS Project will create
a large consortium of scientists and clinicians with expertise in ME/CFS and
top-notch experts in relevant scientific fields and
will also include world-class scientists not currently working on this disease.
It will be modeled after two former success stories:
- The Human Genome Project, launched by James D. Watson, PhD
(who has joined our Scientific Advisory Board).
- The Consortium on Inflammation and Host Response to Injury in Humans (gluegrant.org),
led by Ronald G. Tompkins, MD, ScD (who has also joined).
The project will find grants and funding, and determine the most effective course of research.
The goal is to understand the disease at a molecular level,
finding diagnostic markers, effective treatments, cure and prevention.
Basic research will be conducted in the best scientific laboratories.
ME/CFS clinicians will provide their intimate knowledge of the disease and
conduct any clinical trials. We will work until answers are found.
The Open Medicine Foundation is honored to announce that
Dr. Ronald W. Davis will join the OMF as its new ME/CFS Scientific Advisory Board Director.
Dr. Davis is Professor of Biochemistry and Genetics at Stanford University and
Director of the Stanford Genome Technology Center.
The originator of numerous innovations in genetics technology, molecular instrumentation,
Dr. Davis is known as one of the "fathers of the modern era of human genetics".
He was a key scientist in the Human Genome Project,
perhaps the most groundbreaking project in medicine in the last 15 years.
His pioneering and collaborative work has gained
Dr. Davis the respect of scientists and clinicians worldwide.
Other remarkable scientists that will join Dr. Davis on the Scientific Advisory Board include:
- Mario Capecchi, PhD – Nobel Prize Laureate, currently working on molecular genetic causes underlying human disorders involving the immune system and the brain;
- Mark M. Davis, PhD – renowned immunologist;
- H. Craig Heller, PhD – sports fatigue expert with broad knowledge of physiology;
- Andreas M. Kogelnik, MD, PhD prominent ME/CFS clinician-scientist;
- Baldomero M. Olivera, PhD – innovative neurobiologist;
- Ronald G. Tompkins, MD, ScD – prestigious trauma physician;
- James D. Watson, PhD – Nobel Prize Laureate for his determination of the structure of DNA
A few additional top scientists are yet to be recruited.
Together, they will recruit a large consortium of leading researchers and clinicians
including many already involved in ME/CFS.
This collaboration will bring in expertise in a wide range of body systems and
a diversity of disciplines including medicine, genetics, biochemistry,
immunology, infectious disease, neurophysiology, bioinformatics, and statistics.
Producing a Breakthrough
The END ME/CFS Project was founded on the idea that
a comprehensive, interdisciplinary effort is needed
to produce breakthroughs in our understanding of ME/CFS and neuro-immune diseases.
The OMF's goal is to connect the best experts,
from inside and outside the field,
through openness and information sharing.
Linda Tannenbaum, Executive Director of the OMF, and
Ronald W. Davis, PhD also have a personal goal
to find answers as quickly as possible
as they have a daughter and a son, respectively, suffering from ME/CFS.
Personal dedication can be a powerful force
for making breakthroughs in difficult to understand diseases.
The Scientific Advisory Board under the guidance of Dr. Davis
will lead the consortium in a collaborative manner
to move research as fast as possible
in the least expensive and most systematic manner.
At their first meeting they will draw up
a comprehensive list of doctors and scientists to join the consortium.
Five million Dollars
OMF is setting an initial minimum goal of $5 million per year for the "End ME/CFS" project.
To join in this campaign to End ME/CFS and Donate to the Open Medicine Foundation,
please go today to www.openmedicinefoundation.org/ways-of-giving/ donate
or contact us at firstname.lastname@example.org.
Ask your friends, your family and your peers to donate to this ground-breaking project
that will be a catalyst to the understanding of all Neuro-Immune Diseases.
Be part of this historic effort to unlock the mystery
to find a cure & share the hope of millions of patients worldwide!
Scientific Advisory Board