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Hoe David Tuller

(New York Times)

via PACE en XMRV

steeds beter geÔnformeerd raakte






In een interview met journaliste Julie Rehmeyer legt David Tuller (New York Times) uit

hoe hij er na een door hem geschreven artikel over CBT/GET artikel over de PACE-trial

achter kwam dat de zaken toch heel anders lagen dan hij in eerste instantie dacht,

en besloot om een zeer uitgebreid, historisch artikel over ME/CVS en het CDC te schrijven.


Welllicht dat journalisten in Nederland en BelgiŽ iets van deze "les" kunnen op steken...






Een aantal artikelen van David Tuller in de New York Times over ME/CVS:







David Tuller untangles the research history of chronic fatigue syndrome





I think all of this is really important for understanding why patients can be so suspicious and paranoid. In most of the coverage, the XMRV situation was decontextualized from the experience of patients and history of the illness, although Amy Dockser Marcus did some terrific reporting in the Wall Street Journal about the back story. But no one had really focused in depth on the case definition problem and the CDCís role in perpetuating that problem.





What lessons can science journalists draw from your experience in writing this story?




For science journalists writing about complex public health issues, I think itís important not to take the CDCís word for it, nor academic researchers, nor the press releases about the studies. Read the studies yourselves. Read the studies criticizing those studies, and the responses to the critics.




What was the process of trying to sell the story like?


I think itís hard in general with this issue, because itís a hard thing to explain to editors as much as anyone else who hasnít seen it up close. First you have to convince people that itís an illness and not just a psychological thing, and then you have to explain that the CDCís program has been really screwed up. That preamble takes so long that itís hard to explain the story. Itís not a story that you can do in 800 or 1500 words.






Met dank aan Evelien en Rob.