Onderstaand artikel van de hand van Julie Rehmeyer verscheen op 6 oktober in de Washington Post.
Het artikel vat op voortreffelijke wijze de medische en politieke situatie rond ME (CVS) samen.
What is chronic fatigue syndrome, and why aren't we doing more to treat the illness?
By Julie Rehmeyer October 6 at 5:59 PM
Eight years ago, collapsed on a neurologistís examining table,
I asked a naive question that turned out to be
at the center of a long-running controversy:
"So what is chronic fatigue syndrome?"
I had just been diagnosed with the illness,
which for six years had been gradually overtaking me.
A week earlier, I had woken up barely able to walk.
Fatigue hardly described what I felt. Paralysis was more like it.
"We donít understand it very well," my neurologist said, his face blank.
He could recommend no tests, no treatments, no other doctors.
I came to understand that, for him,
the term chronic fatigue syndrome meant "I canít help you."
My neurologistís understanding of the illness
mirrored that of many doctors,
who believe two things about CFS:
that itís probably psychosomatic and
that thereís nothing doctors can do for it. .