Vorige week is in Engeland Lynn Gilderdale, op 31-jarige leeftijd overleden,
na een 17 jaar durende, onmenselijke strijd tegen haar "vermoeidheidsziekte".
Lynn, "het gezicht van" de 25% groep (klik hier), was aan het eind van haar jonge
leven nauwelijks meer in staat mensen te herkennen en dingen te herinneren.
Haar moeder is vrijwel direkt na het overlijden van Lynn door de politie aangehouden,
omdat zij verdacht wordt van mogelijke betrokkenheid bij de dood van haar dochter.

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09/12/2008
Moeder verdacht van moord op chronisch vermoeide dochter
De politie van het Britse Stonegate verdenkt een moeder ervan haar 31-jarige dochter uit medelijden te hebben gedood.
Lynn Gilderdale leed aan chronische vermoeidheid en lag al 16 jaar in bed.

De zieke dochter Lynn Gilderdale.
In haar kinderjaren was Lynn een gelukkig kind. Ze hield van zeilen, zwemmen, fietsen en muziek.
Maar toen werd ze ziek.
In 1992 stelden de dokters CVS - het Chronisch Vermoeidheidssyndroom - bij haar vast.
In de mate van het mogelijke vocht Lynn tegen de vooroordelen van de ziekte.
Haar moeder Kay werd haar voltijdse verpleegster.
Lynn Gilderdale leed aan een erge vorm van CVS.
In een vergevorderde fase van de ziekte kon ze enkel nog haar pink bewegen.
Ze had ook alle moeite van de wereld om kennissen te herkennen.
Licht verdroeg ze toen al lang niet meer.
Haar huid was zo bleek dat ze op een doorschijnende pop leek.
Twee jaar geleden sprak haar moeder Kay nog in een interview haar wanhoop uit.
'Lynn ligt opgesloten in haar kamer. Ze is niet dood, maar ze leeft ook niet meer.
Mijn moederhart bloedt als ik zie hoe mijn dochter aftakelt.
Ik denk niet dat het goed voor haar is als ze nog zestig jaar op deze manier moet leven.'
Donderdag vond de politie Lynn Gilderdale dood bij haar thuis.
Haar moeder Kay werd gearresteerd op verdenking van moord. Ze werd op borg vrijgelaten.
Verder onderzoek moet uitwijzen hoe Lynn Gilderdale precies stierf.
Haar familie hield intussen een herdenkingsmis.
'Lynn vocht lang en hard. Ze trotseerde 16 jaar lang haar ziekte en constante pijn.'
Er is geen gekende kuur om CVS te genezen. (bjm)
http://www.nieuwsblad.be/Article/Detail.aspx?ArticleID=GH023Q1U7

Woman arrested over 'murder' of sick daughter
Philippe Naughton
December 8, 2008
A woman from East Sussex has been arrested on suspicion of murder over the death of her daughter,
who had spent more than half her life bedridden with the debilitating disease ME.
Kay Gilderdale was arrested last week after the death of her daughter Lynn, 31,
who was given a diagnosis of Myalgic Encephalopathy in 1992 and had required 24-hour care ever since.
Police were called to Mrs Gilderdale's bungalow in the village of Stonegate, near Tunbridge Wells, at 8.30am on Thursday.
A spokeswoman for Sussex Police said: "A 54-year-old woman from Stonegate, arrested on suspicion of murder,
has been interviewed and bailed to return on March 6."
Lynn Gilderdale had been suffering from ME, sometimes known as Chronic Fatigue Syndrome, since the age of 14.
She had been unable to speak - communicating with her mother only via sign language -
although she still had managed to campaign for a better understanding of her illness.
Her father, Richard, is a former inspector with Sussex Police who still works for the force in a civilian capacity.
The investigation into the young woman's death is being led by Sussex Police’s Major Crime Branch.
Chief Inspector Heather Keating, the local commander, said:
"This is a very tragic incident, but we are not looking for anyone else in connection with it."
A family tribute released today through Sussex Police described Mrs Gilderdale as a
"totally dedicated mother" who was still determined to fight for recognition of a "life-destroying illness".
It said that Lynn Gilderdale had "fought long and
hard for 17 years with immense bravery, enduring constant pain and sickness.
"Every system of her body was affected.
She required 24 hour care that was provided by her totally dedicated mother, with continuous support from Lynn’s father."
The family said that Lynn had been admitted to hospital many times,
sometimes for a period of several months, for life-threatening conditions.
The statement added: "Prior to her illness, which left her paralysed, unable to speak, eat or drink
and until recently, with no memory, she was an active healthy teenager full of life’s dreams.
"She grew up in the Stonegate area, attending local schools and participating fully in her local community.
She enjoyed sailing, swimming, cycling and was an accomplished musician.
"Her family praise and admire Lynn for her courage, which she showed to the end."
"She was a much-loved daughter, sister and granddaughter
who despite her illness always gave love and support to others.
"Lynn’s family say her death will leave a massive void in their lives – and
the love she gave so unreservedly, will be missed every minute of the day."
http://www.timesonline.co.uk:80/tol/news/uk/crime/article5306389.ece

News
Mother is held over 'mercy killing' of ME victim
Anna Davis
08.12.08
Misunderstood: when her condition was at its worst, 31-year-old Lynn Gilderdale did not recognise anybody
A POLICE worker's wife has been arrested on suspicion of
the mercy-killing murder of the couple's seriously ill daughter.
Detectives are examining the exact circumstances of the death of 31-year-old Lynn Gilderdale,
who died at her home in Stonegate, East Sussex, on Thursday.
Her 54-year-old mother Kay, who was also her full-time carer,
was arrested on suspicion of murder and has been released on bail pending further inquiries.
Lynn's father Richard, who is separated from her mother,
is an ex-police sergeant who still works for the police in a civilian role in Hastings.
Lynn was diagnosed with ME (myalgic encephalomyelitis) also known as chronic fatigue syndrome, in May 1992
and spent much of her life unable to leave bed, communicating with her family through sign language.
Lynn's parents were united in grief this afternoon at the £400,000 bungalow where Mrs Gilderdale and her daughter lived.
Speaking from the house Mr Gilderdale said: "We are grieving at the moment.
This is a very difficult time for us. We would like to be left alone for now."
In an interview two years ago, Mrs Gilderdale revealed
how doctors at a specialist clinic in London treated her daughter as an attention seeker with a made-up illness.
She said that although Lynn could not swallow, spoke only in a whisper and failed to recognise people,
she was made to undergo punishing experiments. "It's like she's in limbo," she said.
"If someone dies, you mourn them, then you get to a stage where you know that person is gone and you move on.
But Lynn is neither one nor the other. She is stuck in that room, not dead, but not alive properly."
Chief Inspector Heather Keating, the Rother district police commander, said:
"This is a very tragic incident. We are not looking for anyone else in connection with it."
At her worst, Lynn could only move her little finger,
failed to recognise anybody or remember anything and experienced painful muscular spasms.
She could not bear any light, touch or noise and could hear only one whispered voice at a time.
Lynn, who has an older brother Steve, was on a cocktail of drugs to relieve her symptoms.
She slept for 16 hours a day and never went outside except to hospital.
Because she was bedridden, she often had blood clots and
suffered from severe osteoporosis, irritable bowel syndrome and asthma and was fed through a tube.
Speaking in 2006, Mrs Gilderdale said:
"I don't resent what it has done to my life but I do resent whatever has made her so ill.
"It's been heartbreaking to watch my child lose her faculties one by one.
But I am really hoping that once the virus which caused her ME has finally burned itself out, everything else will start working again.
It would be enough just to feel the air on our faces."
There is no known cure for ME and Mrs Gilderdale has told how she followed research online.
http://www.thisislondon.co.uk/standard/article-23598488-details/Mother+is+held+over+'mercy+killing'+of+ME+victim/article.do

Mother arrested after death of sick daughter
By Jennifer Cockerell and Elizabeth Barrett, PA
Monday, 8 December 2008
The mother of an ME sufferer has been arrested b police on suspicion of murder
after the death of her acutely ill daughter, it emerged today.
Kay Gilderdale was released on bail pending further inquiries following the death of her daughter Lynn, 31,
who was a prominent figure in campaigning for better understanding of the illness.
Police were called to her home in Stonegate, near Heathfield, East Sussex, at 8.30am on Thursday.
A spokeswoman for Sussex Police said:
"A 54-year-old woman from Stonegate, arrested on suspicion of murder, has been interviewed and bailed to return on 6 March."
Kay Gilderdale provided round-the-clock care for her frail daughter alongside Lynn's father Richard.
The investigation is being led by Detective Chief Inspector Andy Griffiths, from Sussex Police's Major Crime Branch.
Rother district police commander Chief Inspector Heather Keating said:
"This is a very tragic incident, but we are not looking for anyone else in connection with it."
Relatives of Ms Gilderdale today praised her
"courage, which she showed to the end" in coping with her "life-destroying" illness.
They said her death would "leave a massive void in their lives" and added
"the love she gave so unreservedly will be missed every minute of the day".
In a written tribute released through Sussex Police today, her family said:
"Lynn was young, beautiful, loving and caring.
"At the age of 14 years she was struck down by ME - an illness greatly misunderstood - and,
as a result, suffered the stigma attached to this dreadful illness.
"She fought long and hard for 17 years with immense bravery, enduring constant pain and sickness.
Every system of her body was affected.
She required 24-hour care that was provided by her totally dedicated mother, with continuous support from Lynn's father."
Describing the debilitating effects the illness had on her body, the statement went on:
"Lynn suffered many hospital admissions, sometimes lasting several months, for life-threatening conditions.
"Prior to her illness, which left her paralysed, unable to speak, eat or drink and,
until recently, no memory, she was an active healthy teenager full of life's dreams.
"She enjoyed sailing, swimming, cycling and was an accomplished musician."
Her family vowed today to continue to campaign for a "better understanding" of ME.
"She was a much-loved daughter, sister and granddaughter who,
despite her illness, always gave love and support to others.
"In life Lynn strove to help the medical profession improve their insight into ME,
which affects thousands of people in varying degrees of severity.
"Her dedicated mother, supported by Lynn's family, has pledged to achieve her ultimate goal -
for better understanding and recognition of this life- destroying illness."
Some 250,000 people are estimated to be affected by ME (Myalgic Encephalopathy) in Britain,
according to The ME Association's website.
Common symptoms include severe and debilitating fatigue, painful muscles and joints, disordered sleep,
gastric disturbances and poor memory and concentration.
http://www.independent.co.uk/news/uk/crime/mother-arrested-after-death-of-sick-daughter-1057528.html
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