Lily Chu (vicevoorzitter van IACFS-ME en lid van de IOM-commissie die de SEID-criteria aanprijst) e.a.

hebben de symptomen van een groep van 131 CVS-patiënten na 6 maanden ziekte in kaart gebracht

en geanalyseerd in hoeverre de patiënten aan de SEID-, ME-ICC- en ME/CVS-CCC-criteria voldeden.

Het resultaat ziet U hieronder in tabel 2 weergegeven:

De auteurs suggereren, op basis van tabel 5 (hieronder), dat de SEID-, ME-ICC- en CCC-criteria

dezelfde patiënten afdekken en dat, gezien de eenvoud, de SEID-criteria de voorkeur verdienen.

Tabel 2 en tabel 5 lijken met elkaar in tegenspraak (en zijn dat ook!).

Dat wordt duidelijk uit figuur 8 (en figuur 4) van de 'bijlagen' (Supplementary Material):

Slechts 50 van de 103 patiënten voldoet aan alle vier criteria.

Van de 94 patienten die aan de SEID-criteria voldoen (getallen binnen het gele vak),

voldoen 56 patiënten aan de ME-ICC-criteria (getallen binnen het groene en gele vak) en

voldoen 71 patiënten aan de ME/CVS-CCC-criteria (getallen binnen het paarse en gele vak).

Stellen dat bijna alle mensen die aan de SEID-criteria voldoen ook aan de ME-ICC- en CCC-criteria

voldoen, is slechts de halve 'waarheid' verkondigen: het omgekeerde geldt namelijk niet...

Patients diagnosed with Myalgic encephalomyelitis/chronic fatigue syndrome

also fit systemic exertion intolerance disease criteria.

Chu L, Norris JL, Valencia IJ, Montoya JG.

Fatigue: Biomedicine, Health & Behavior. 2017; 5(2): 114-128. http://dx.doi.org/10.1080/21641846.2017.1299079

Abstract

Background:

Myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)

remains undiagnosed in up to 91% of patients.

Recently, the United States-based Institute of Medicine (IOM) developed

new diagnostic criteria, naming it systemic exertion intolerance disease (SEID).

Purpose:

We examined how subjects fit SEID criteria and existing ME/CFS case definitions early in their illness.

Methods:

A total of 131 subjects fitting 1994 Fukuda CFS criteria at the time of study recruitment

completed a survey of symptoms they experienced during their first 6 months of illness.

Symptoms were drawn from SEID and existing criteria

(1994 Fukuda, 2003 Canadian Consensus Criteria (CCC), and

2011 Myalgic Encephalomyelitis-International Consensus Criteria (ME-ICC)).

We calculated and compared

the number/percentage of subjects

fitting single or combinations of case definitions and

the number/percentage of subjects with SEID

experiencing orthostatic intolerance (OI) and/or cognitive impairment.

Results:

At 6 months of illness,

SEID criteria identified 72% of all subjects,

similar to when Fukuda criteria (79%) or the CCC (71%) were used,

whereas the ME-ICC selected for a significantly lower percentage (61%, p < .001).

When severity/frequency thresholds were added to the Fukuda criteria, CCC and ME-ICC,

the percentage of these subjects also fitting SEID criteria increased to 93%, 97%, and 95%.

Eighty-seven percent of SEID subjects endorsed cognitive impairment and 92%, OI;

79% experienced both symptoms.

Conclusions:

SEID criteria categorize a similar percentage of subjects as Fukuda criteria

early in the course of ME/CFS and

contain the majority of subjects identified using other criteria while requiring fewer symptoms.

The advantage of SEID may be in its ease of use.

Keywords

Systemic exertion intolerance disease (SEID); Myalgic encephalomyelitis (ME);

chronic fatigue syndrome (CFS); diagnosis; Canadian Consensus Criteria (CCC);

Myalgic encephalomyelitis – international consensus criteria (ME-ICC)

http://www.tandfonline.com/doi/pdf/10.1080/21641846.2017.1299079?needAccess=true