Ryan Prior and Nicole Castillo
hebben het initiatief genomen een documentaire te maken
The Blue Ribbon: ME/CFS and The Future of Medicine: een gemeenschapsproject.
Ze trekken door Amerika om researchers, dokters en ME/CVS-activisten te interviewen.
De film zal beschikbaar gesteld worden aan patiŽntengroepen die de film willen vertonen.
De makers willen de film low-budget produceren en vragen ieder om een kleine bijdrage.
Misschien iets meer dan de $ 3,64 die de NIH per patient jaarlijks aan onderzoek besteedt...
Om de website van de documentairemakers te bezoeken, klik op onderstaande afbeelding:
Hieronder kunt U de trailer van de documentaire The Blue Ribbon bekijken.
Voor twee opinieartikelen van Ryan Prior in USA Today, klik op onderstaande logo's:
The Blue Ribbon: ME/CFS and The Future of Medicine
by Ryan Prior
The Blue Ribbon is a film exposing the hidden story of ME/CFS.
It features interviews with top researchers, doctors, and activists.
"ME/CFS is the great under-reported medical story of the times."
Llewellyn King, host of PBS's White House Chronicle and columnist for the New York Times-Hearst Syndicate.
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The story of this film begins with a story I
wrote for USA TODAY
about my struggle with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
over the last 6 years.
The response to the article marked me deeply.
People from all over the world wrote in describing the pain of living with the illness.
Many talked of decades unable to work or even to participate in normal life.
Patients feel a constant, unrelenting exhaustion
that is unrelieved by sleep, rest, or exercise.
Because there is no treatment, they are often disabled.
I started to feel a moral calling for an
in-depth creative and journalistic investigation into the roots of this illness;
it was a calling to give these unheard voices a forum
to speak to a world that has neglected them for far too long.
I firmly believe that the first step to improving these lives
is for greater global awareness of ME/CFS.
Only then can we receive more research funding and remove the sad stigma
that often prevents a frank international conversation beginning at all.
This film is the best way of doing that.
Our proposed route
We plan to travel through 10 cities across North America
interviewing activists, patients, researchers, and doctors.
We'll produce a feature-length film documentary
for release on Netflix, Hulu, iTunes, and Amazon Video on Demand.
Yet even more than that,
we plan to equip people in towns and cities across the world
to stage screenings of the film
in movie theaters, schools, hospitals, churches, and community organizations.
It's a tragic fact of this illness that
most patients are far too ill to protest in the streets
in order to get society to hear our voices.
However, we can tell this story through a documentary film,
widely distributed through grassroots organizing.
We can tell the story, together, and help build bridges
between communities of faith, politics, science, and the arts.
True change will happen person by person, one community at a time.
Nicole and I could never do this project on our own.
This is a community project.
It requires not only funding from individuals and organizations
but also an army of people across the world
who are on fire about this film and its message,
who want to tell anyone and everyone about it.
We'll make the documentary.
We'll distribute it on Netflix, Hulu, and iTunes.
But we'll need each and every one of you to help make its message stick.
It is nothing less than a struggle for social justice. Come join us!